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Anyone dealing with allergies will know and appreciate the challenges you face. Every single day is a negotiation of a multitude of situations that you need to steer your little one through, to get to the end of the day whilst staying safe.

Callum Nat

It’s hard, emotional and can get to you when you least expect it.

We’ve been dealing with Callum’s situation for quite a while now, and we’re used to the unknown and learning how to deal with reactions, figuring out the huge collection of drugs that keep him going, and more.

We’ve gone through massive reactions that have seen him hospitalised for days.

We’ve battled repeated pneumonia.

And there’s been so much more!

My last big melt down over it all was the day before his 4th birthday. The magnitude of what he goes through, and what we go through as a family hit hard.

Why am I looking back on all this?

Callum had a regular check up with his consultant just before Easter. It was nothing out of the ordinary. A usual appointment to check his weight, see how well we were controlling his asthma and eczema. And also discuss his many allergies and how we’re managing his diet.

But, it didn’t stop here.

For the past year, a number of lymph nodes have been continuing to get larger, along with Callum not really putting any weight on, and also remaining extremely lethargic. His diet is at optimum level, his bloods regularly come back saying his levels across the board are exactly where they should be.

Good to know my Nutritional Therapist training is working!

But ongoing lymph node enlargement is not a good sign, especially when one of them is 1cm or larger, and at least 1 other is 0.5cm or larger.

It caused sufficient concern with the consultant for him to organise bloods and scans to determine what has been going on.

For the past 3 weeks we have had this hanging over our heads, and if truth be told, I’ve really struggled with it.

I’m not sleeping, and I’m focusing on my work, studies and the final bits to organise for our upcoming wedding to keep my mind off it all.

We got the blood tests results back yesterday morning, and thankfully they’re not showing anything sinister (which is what we were warned of and why I’ve been so worried), but it’s still thrown a few questions up and we're not out of the woods yet. A scan in a weeks’ time should hopefully provide us with more information.

I’ve grilled our GP, and also Callum’s consultant, and they’ve both confirmed in principal that the bloods seem ok, but still have unanswered questions that need addressing.

The bloods also threw up that Callum’s vitamin D levels are a little lower than normal, which is puzzling as his diet is built around ensuring he gets enough of everything due to him having so many restrictions. There is a good chance his body isn’t absorbing vitamin D, so this needs to be looked into as well.

At the moment this mummy is plodding on, emotional and worried. And throughout all of this, Callum in his usual brave and amazing self, just continues to be smiling, happy and adjusting accordingly. His moods have become stronger and harder to deal with at times, but when in constant discomfort, it’s understandable that he’s going to be a little mad at the world and needs to let it go.

The kid amazes me on a daily basis, he always has done, but this really does take it to new levels.

18 severe allergies, 10 slightly less so, severe eczema and asthma, hayfever, hypermobility, and now god knows what this is too.

I think this brave soldier needs a bit of a break now, don’t you?

What do you all do to cope? Any tips?

Callum and Nat 1

We've linked this post to Honest Mum's Brilliant Blog Posts

Comments   

0 # Midgie 2016-04-07 20:41
Oh Hun, big hugs for everyone! The Peachicks often have enlarged lymph nodes apparently due to allergic reactions, although not that big and they flare up & settle down. As for coping.. Swimming, writing the blog & wine although not together!

Xxx
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0 # Intolerant Gourmand 2016-04-08 09:22
Thank you lovely! I wish these would go down and settle, but they just seem to keep getting bigger!
Writing and Prosecco definitely help! And studying is too! :) x
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0 # Honestmum 2016-04-08 10:38
Oh goodness you guys have been through so much, hope little guy feels better soon and you get the answers you need. Thanks for linking up xx
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0 # Intolerant Gourmand 2016-04-08 20:56
Thank you lovely! xx
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0 # Mummy Tries 2016-04-08 18:32
Ahhh hon, what a worry. So pleased there's nothing sinister going on and best of luck with the vitamin d absorption. Have you thought of fermented cod liver oil? It's one of the very best vitamin d supplements available. I'm not sure if Callum can have fish, but if he can then it might be worth looking in it xxx
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0 # Intolerant Gourmand 2016-04-08 20:57
Thank you lovely! We've just started him on the vit d supplements, so we'll see if it helps at all! xx
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0 # Varsha 2016-04-19 09:16
Hi there
Seriously look in to
http://www.ayushakti.com/

It is amazing
We use them for my daughter. Same scenario as Callum
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